Who we are
SCASF is an innovative foundation combining lived experience, community support, and honest education to make living with sickle cell more supported. Here is our vision, step by step.
Origin
Created from lived experience navigating life with sickle cell while building a career, nurturing community, and learning what it means to live fully.
Shifting focus
For a long time, conversations centered on fear. We widen that conversation to share honest stories and offer clear, empowering education.
Choosing hope
We acknowledge the challenges while actively choosing hope, possibility, and growth. A diagnosis does not stop a purposeful life.
Advocacy in action
We actively advocate for inclusive schools, workplaces, and communities that support people living with sickle cell with true dignity.
Statement from our founder
SCASF was created from lived experience from navigating life with sickle cell while building a career, nurturing community, and learning what it means to live fully with intention.
For a long time, conversations around sickle cell centered on fear, limitation, or silence. This space exists to widen that conversation to share honest stories, offer clear learning, and advocate for schools, workplaces, and communities that support people with dignity and understanding.
SCASF is not about pretending challenges don't exist. It's about acknowledging them while still choosing hope, possibility, and growth. It's a reminder that life does not stop at a diagnosis and that no one has to navigate this journey alone. Whether you are here to learn, to share, or simply to listen, you are welcome.
Meet the team
Behind SCASF
A dedicated team united by purpose, lived experience, and a shared belief in dignity, inclusion, and life beyond the crisis.
Frequently asked
questions
Find honest answers and clear education about sickle cell, our advocacy efforts, and how you can get involved in the community.
Our main goal is to empower lives beyond the crisis by sharing honest, authentic stories, offering clear education, and advocating for more inclusive environments in schools, workplaces, and communities for individuals living with sickle cell.
Not at all. While we center the voices and experiences of those living with sickle cell, SCASF is also for family members, caregivers, friends, educators, and employers who want to learn how to offer true support, dignity, and understanding.
We host a vibrant, supportive community group where individuals can connect, share experiences, and access resources. You can join directly by clicking the "Join our community" button in the navigation bar to access our secure WhatsApp group.
We partner with institutions to provide educational workshops, practical inclusion strategies, and policy guidance. We help organizations shift their perspective from viewing sickle cell merely as a medical limitation to actively designing environments where affected individuals can thrive.